I’d like to take a moment to address some questions about why Alicia’s family and friends have put together this site/are Tweeting about it/have set up a Facebook page.
Firstly, I want to reassure everyone that this endeavor is not only blessed and but encouraged by the Parlettes, especially Alicia. She has wanted to get back to writing and sharing her life and story with the audience who had expressed so much interest and engagement with her Chronicle series for some time. The response from the online community has been overwhelmingly positive – notes of love, friendship, inspiration, hope, joy, etc. – I think this interest in her story made Alicia want to share more about her hope, struggle, and faith.
We hope that msparlette.com, the Twitter account and the Facebook page will create a community for those to talk about their own experiences with cancer, be it personal or perhaps watching a loved one struggle. For her friends (both near and far) these pages serve as a way to stay up-to-date with Alicia’s condition and share stories, pictures, and videos about our friend.
My understanding is that Alicia has been doing some (perhaps more personal) writing since she stopped blogging for sfagte.com in 2007 – we are working on locating all of this as well as determining if it is publishable, or if it was ever meant to be. She is also dictating notes into a recorder and we are working to transcribe those and share those as well. She does want to write but her energy level is quite low – she was set up with a WordPress username and login information last week but has not been able to sit down and type something.
The site is also helping to raise money to cover medical expenses – while Alicia is getting financial assistance through some government programs, it’s unclear how much of her medical coverage will be taken care of and how much she/her family must pay for. We do not have access to her financial records and are currently operating under the impression that assistance is welcome, though not necessarily required, at this point.
Finally, we wanted to ensure that there was one location that had correct, up-to-date information about Alicia and her health condition. Unfortunately, she never got around to setting one up, but we are more than happy to do so for her.
We do hope that you are getting something from all these social media experiences, but also are quite open to feedback or suggestions. Please reply in the comments or write to us directly at firstname.lastname@example.org.